"For you created my inmost being;

you knit me together in my mother’s womb.

I praise you because I am fearfully and wonderfully made;

your works are wonderful, I know that full well.

My frame was not hidden from you when I was made

in the secret place, when I was woven together

in the depths of the earth. Your eyes saw my

unformed body; all the days ordained for me

were written in your book

before one of them came to be."

Psalm 139: 13-16

Saturday, February 8, 2014

Say It's So

Happy New Year! We're inching through these last weeks of winter, and ever closer to Meghan's second birthday. Apart from being cooped up in the house other than outings for therapy we've had a really great few weeks. On the medical front, she just saw her GI and dietitian and we're upping her calories to see if we can get her to put on some weight (she's still in 12 month pants!). She is so active lately! We're also looking into a blenderized diet for her (whole food nutrition through her g-tube), but we have to work closely with the dietitian to make sure she gets exactly what she needs. Other than that we've been working hard in PT to strengthen her legs. She's very motivated to stand, and reach objects that were previously unavailable to her- including- joy- the toilet lid (why does every toddler find fascination with this??). She also got to try out a gait trainer (think walker, for very tiny people), but as you can see, Meg was not exactly a fan...

We are told she'll get used to it:) 

The last couple months Meghan has continued to add words to her vocabulary. She can name more objects now than I can count, and has several phrases such as "hold you", "sit on the couch", "hi sweetie", and "more chicken!". Last night I had given her a bath and was holding her while we brushed her teeth (well, I get one swipe and she says "you try!" and grabs the brush). Out of the blue, she looks at me, leans in and gives me a Meghan hug (the arms aren't part of the hug just yet:). Then she looks up and says "I love you so much". Quite possibly the first five word phrase I have heard her say. Be still my mommy heart. For this sweet little girl who has the scariest brain MRI report I have ever read to be able to say that to me is a miracle. Every single child born is born with a purpose, regardless of their given abilities. So much of Meghan's life remains uncertain, and I don't know what plans the Lord has in store for Meghan for her future, but I am now absolutely certain that Meghan's purpose includes having a voice- and with that voice, we will teach her to praise the one who gave it to her. 

"I praise you Lord, for I am fearfully and wonderfully made"
Psalm 139:14

Here's a little sample of what she's doing recently. This is Meghan's Grammy:) Thanks to ALL our family who are in her face teaching her just as much as we are! 


  1. This comment has been removed by the author.

  2. I love reading your blog! She is one amazing little girl. ...being raised by one amazing family! It is so evident is all she can do and how she is growing that she is exactly the way God has intended for her to be. GOD has great plans for this sweet pea! !! God bless her and your family!!

  3. Meghan is fearfully and wonderfully made on a journey purposed by God., just like her Mommy, Daddy, Sister, Grammy, Grandpa(?) - who live for each other and all live for God. Keep up the good work.

    And thank you for the uplift!