"For you created my inmost being;

you knit me together in my mother’s womb.

I praise you because I am fearfully and wonderfully made;

your works are wonderful, I know that full well.

My frame was not hidden from you when I was made

in the secret place, when I was woven together

in the depths of the earth. Your eyes saw my

unformed body; all the days ordained for me

were written in your book

before one of them came to be."

Psalm 139: 13-16

Wednesday, July 31, 2013

Sweet Summer

This post is a happy post. This post is shared with complete joy as we have had an awesome few weeks. Once Meghan recovered from being sick, she pretty much let us know that she was ready to move forward, and has taken some really big strides in her development! We met with her neurologist who said that she is cognitively making great progress. Because of her motor developmental delay, he diagnosed her with cerebral palsy. We knew that that was probably coming, and it's ok. At the end of the day, Meghan is Meghan, no matter what diagnosis they choose to assign to her- and we are totally amazed by her, every day. Here's a little glimpse of what she's doing:

The video quality is terrible- why? Because she has figured out that there are GAMES on my phone, and if she sees the phone, it's over. So I had to be sneaky with the camera to capture her doing something we didn't really even teach her...Meghan's Voice.

So she can count! Who knew?? The words have been pouring out of her lately. Animal sounds, water, bath, light, love you, and her personal favorite, baby signing time. It is so sweet to hear her little voice start to take a place in the daily soundtrack of our life.

Thankfully, we've been enjoying our summer! We even got to take a vacation a couple weeks ago, and it was one of the best weeks we've had in a long time. Relaxing. No therapy or appointments. Ice cream on the menu every day. A little bit of awesome, that couldn't have come at a better time.

September will resume the craziness- Meghan is scheduled for another MRI, combined with two minor surgical procedures, and a g tube change to start out the month, and then it's full speed ahead with the usual therapies, and appointments, and likely eye surgery sometime this fall as well. And oh yeah- PRESCHOOL. How on earth did my little girl get so big? I know every parent asks this question, but I am still amazed at how fast her 4 years have gone. So we'll throw in some more crazy to the mix. Bring it on:)

Want to see what we've been up to?

A little snuggling...
 A little learning...
 A little swinging...
 A little sweetness...
 A little exploring...
 A little relaxing..
 A little smiling...
 A little munching...
 A little roaring...
 And a lot of loving. This past week we had the opportunity to meet up with two other "hydro families". I got to meet the handsome Grady, and sweet Zoe (pictured here) who has been through quite a lot herself. With life being as crazy as it is for families of children with special needs, taking the time to meet up is difficult, but a precious thing happens when you get to connect with people on a similar journey in life. It was a blessing to get to spend a couple hours with such great families.

We are so thankful that we have had the opportunity to meet such amazing people- connecting with the kids, and with each other. These moments mean so much, and it's because of them that we have learned to appreciate these simple little blessings.

 A friend loves at all times, and a brother is born for adversity.
                                       Proverbs 17:17