If your baby has just been diagnosed with hydrocephalus, you are not alone! One of the best parental resources for hydrocephalus that we found was a website maintained by another "hydro mom":
www.fetalhydrocephalus.com
There is a lot of practical information to be found there. It may also be overwhelming, so remember, every child's hydro journey is different.
Also, everyone tends to focus on ventricle measurements- I know we did when we first found out about Meghan's hydro. If I can offer one piece of advice: while the "numbers" or the "prognosis" may be severe, the brain is an amazing creation, and no one can predict what an individuals outcome will be. So read, be prepared, take things one day at a time- and always, always have HOPE.
Perfectly worded, Sarah! I could have used those words spoken to me when I was pregnant with my Cayman. Blessings.
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