"For you created my inmost being;

you knit me together in my mother’s womb.

I praise you because I am fearfully and wonderfully made;

your works are wonderful, I know that full well.

My frame was not hidden from you when I was made

in the secret place, when I was woven together

in the depths of the earth. Your eyes saw my

unformed body; all the days ordained for me

were written in your book

before one of them came to be."

Psalm 139: 13-16

Friday, August 31, 2012

Happy Half-Birthday!

We’re 6 weeks post- shunt revision, and finally, things seem to be looking upJ The swelling around her shunt has improved, and it seems to be working the way it should be for now. There is constant uncertainty with that little device! We’re in the midst of many follow ups- ENT/audiology (they want to fit her for a hearing aid in a couple months), neurosurgery (we’re scheduled for a CT scan of her spine this month),  orthopedics (more Xray’s at a year),  and we see her kidney doctor and developmental pediatrician this month as well. The specialist appointments give us lots of information, but it’s the weekly PT/OT that she gets that is becoming the “meat and potatoes” of her care. When we first started out, I thought therapy was a proactive approach to helping her meet milestones. I’ve realized lately that it will be much much more for her, and is probably the most important thing we do for her on a daily basis- besides giving her lots of kisses of course!
It is very hard to believe that 6 months ago, we were preparing to welcome sweet Meghan in to the world in just a few hours. The past 6 months have been filled with challenges, adjustments, and plenty of hard days, but also with joy, love, and a heavenly change in perspective. Oh my, how much our family has grown in these months. Meghan’s up to nearly 13 pounds of sweetness, and the sometimes imperceptible changes that take place in a baby as they grow have become celebrated joys for us as we watch her with a different awareness. It is admittedly difficult not to compare our daughters at the same ages- at 6 months old Addie was starting to crawl! Meghan cannot yet lift her head off the floor, or roll over….. but here’s what she CAN do:  follow us with her eyes, turn her head all the way to the left, reach for a toy, shake a rattle, blow raspberries, smile, LAUGH, arch her back and stomp her foot when she’s frustrated, splash in her bathtub, grab her toes- now even with her left hand!, burp loudly, kick her feet to play with a toy, melt your heart when she touches your face, and make me one thankful mommy. She would undoubtedly have been different from Addison in many ways, even if she was born without the neurologic challenge of hydrocephalus, or the scoliosis that further challenges her mobility. The 6 month mark is bittersweet in ways. The hope that she would be developmentally normal has faded into the reality that this sweet little girl will decidedly have to fight to accomplish things that come easy for other children. That makes my heart ache in a way I cannot describe. But it’s contrasted with absolute gratitude for the miracle that her life is, for the love she has brought to our family, and for how the Lord has used her grow me in ways I would have never imagined. Her life comes with a list of miracles, of answered prayers, of ways that He has shown Himself to be faithful, and of some unanswered prayers that I can only reconcile to His sovereignty. Happy Half-Birthday Meggy Moo.....I cannot wait to see what else I am able to add to the list at one year.

“When they see among them their children, the work of my hands,
they will keep my name holy; they will acknowledge the holiness of the Holy One of Jacob,
and will stand in awe of the God of Israel.” Isaiah 29:23

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